RESILIEN-T: Designing technology driven self-management with older adults
Who & What?
Despite large amounts of research on how to use Information and Communication Technology (ICT) to support self-management of chronic-diseases, there is a lack of clear direction when it comes to using ICT for self-management for persons with cognitive impairment (PwCI). PwCI are rarely involved as active participants in their own care, leading to negative impacts such as changes to lifestyle, loss of self-esteem, alienation, social isolation, and stigmatization. The current study applies a user-centered, participatory approach to involve PwCI in the design of a new mobile application (app), RESILIEN-T.
How?
Co-design workshops were held PwCI using a scenario-based methodology. Based on small interviews with PwCI, profiles of individuals reflecting the target population were created (personas) and the solutions to the needs of these personas were discussed. This created a story made by the PwCI as opposed to following questions predetermined by the researcher. Participants were asked to try 4 existing apps and provided feedback on the design, usability and functionality. They were also shown a prototype for the RESILIEN-T app and asked for feedback on how this app could provide solutions based on the personas and scenarios that they helped create.
Findings
Participants stated that apps which allow for personal goal setting and receiving daily or weekly feedback are important for motivation. Aspects of physical activity, social activity, nutrition and cognition were noted to be most important to participants. Additionally, participants said they found many apps that are recommended for seniors do not appear age appropriate and seem condescending.
Importance
Including PwCI in the design process of apps will ensure that the specific needs of the target users are addressed. This will increase enjoyment and long-term adherence of use.